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Oh my goodness has anybody just watched DIY SOS?  What a loving family and what a terrible condition to have to live with.  We heave both just sat here in😭.  Just humbled by the girls stoic bravery and have such admiration for what a lovely young man the brother was.  Just hope that her future is now brighter.  It really goes to show how much we all take the simple things for granted.

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