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ALD Petition


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Don't know if this news item would have gone out in other areas, but signatures are required for ALD screening to take placed when babies have the heel prick test.   The news item I watched today showed a young boy who was struck down with this brain disease shortly after turning 9 years old, perfectly ok before that.  It does affect more boys than girls, but if found early, i.e. the heel prick test, then bone marrow transplant can be scheduled and a normal life had.   The US has 13 states where the screening is carried out and in Holland it is too.  Click the link, please, and sign this petition.

https://petition.parliament.uk/petitions/563123

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I personally dont Twit/Face, well I read Twits, but don't Tweet 😂

I would imagine that the people involved may well have posted this.   There is a section at the bottom of the Govt. page which has all the logos for Twit/Face.     

I think the child must live in the Kent/Sussex/Essex area because it was on our local BBC news, rather than national.  They have over 11,000 signatures now and are still waiting to hear from Govt.  but it would seem 100,000 is  more likely to get a real response.

Edited by Panders
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